Sarcoma UK

Image showing the Royal Coat of Arms above the text 'Rare Cancers Act 2026, 2026 Chapter 8', followed by a teal banner announcing: 'Update: The Rare Cancers Bill has received Royal Assent, it is now law.

The Rare Cancers Bill has received Royal Assent and is now law.

It’s a vital step toward improving clinical trial access, driving research and ensuring rare cancers are treated with the urgency they deserve.

Thank you to @drscottarthurmp.bsky.social and all who shared their story.

'Want to help us create health information?'

Want to play a part in shaping the information we share?

We’re looking for people with lived experience of sarcoma to join our Health Information Reviewers Panel.

If you’re interested in joining, please email kellie.roberts@sarcoma.org.uk to find out more.

More places are now available for the Hackney Half with #TeamSarcoma! 💙

📅 17 May 2026

Join Team Sarcoma today and run 13.1 miles to support everyone affected by sarcoma runforcharity.com/charity-regi...

As part of the Health and Wellbeing Programme, Liz Gonzales shares information on cancer related fatigue and strategies to manage it.

You can watch the full video at sarcoma.org.uk/HealthAndWel...

Front cover of 'The Clockwork Key' which is a young girl holding a glowing key,

Photo of Ellie, Jack and Teddy in his pram.

✨📚This World Book Day, discover The Clockwork Key: Secrets of Eldridge Hollow by Sarah Howells.

Half of all proceeds support Sarcoma UK’s vital work, funding research and support for people affected by sarcoma.

📖 Get your copy: amazon.co.uk/dp/B0FTXL5PZ

Two boxers sparring in a ring with dramatic lighting and crowd watching. Text reads "GET FIT 8 WEEKS FREE BOXING TRAINING" with UWCB Ultra White Collar Boxing logo and "Fundraise for Sarcoma UK" at bottom.

Ultra Events White Collar Boxing is a unique opportunity for people with no prior boxing background to experience the wonderful world of boxing, in a safe and enjoyable environment!

Sign uop now and raise money for Sarcoma UK at ultrawhitecollarboxing.co.uk/signup/

Francesca, Daisy and another friend smiling at the camera.

Meet Francesca, who will take on her very first @londonmarathon.bsky.social on 26 April in memory of her best friend Daisy 🏃‍♀️

Daisy was just 21 when she was diagnosed with sarcoma. After two years of chemotherapy, radiotherapy and surgery, she sadly died in 2019

sarcoma.org.uk/news

✨ The Glitter Ball Silent Auction is NOW LIVE! ✨

Get ready to bid on some phenomenal prizes, from private dining experiences, luxury holidays, A-list concert tickets, signed memorabilia and many, many more!


Bid now: astarauction.com/sarcomaglitt...

Graphic shows two hands reaching to hold one another. Text reads 'Interested in joining our bereavement support group? It's open to all affected by sarcoma loss.'

The Sarcoma UK online bereavement support group is open to anyone over 18 who has lost someone to sarcoma and whose loved one received care in the UK.

Meetings are held on Zoom, last 90 minutes, and focus on shared experiences and mutual support.

sarcoma.org.uk/bereavement-...

A gift in your will could help fund the sarcoma treatments of the future 💙

We’ve partnered with Octopus Legacy so you can write or update your will for FREE, online, by phone or in person.

Start today: sarcoma.org.uk/legacy

A graphic showing a smartphone with a lock screen notification from Messages reading 'Sarcoma UK Support Line has a new TEXT number.' Below the phone, bold white text reads 'Text us on: 07534 177861', with a speech bubble icon, all on a teal background.

📢 The Sarcoma UK Support Line has a new TEXT number!

💬 You can now text us on: 07534 177861

Our friendly support team is here for you, and you can still get in touch via phone and email using our usual contact details.

Thank you for your continued support 💙

Hackney Half runner dressed as Captain America with a Sarcoma UK top on high fives supporter. Hackney half logo is in bottom right corner

More places are now available for the Hackney Half with #TeamSarcoma! 💙

📅 17 May 2026

Join Team Sarcoma today and run 13.1 miles to support everyone affected by sarcoma runforcharity.com/charity-regi...

Around 16 people are diagnosed with sarcoma every day in the UK. Sarcoma UK and Rare Disease Day logos.

That is around 5,900 diagnoses each year. Graphic of 5 people icons.

Sarcoma includes both bone sarcoma and soft tissue sarcoma. Roughly 1 in 8 sarcoma diagnoses are bone sarcoma.

Find the latest UK sarcoma statistics on our website. Visit: sarcoma.org.uk/newincidence. Sarcoma UK logo.

Sarcoma is a rare cancer that can affect any part of the body, including muscle, bone, tendons, blood vessels and fatty tissues.

On Rare Disease Day, we’re sharing the latest UK statistics to help improve understanding of sarcoma.

sarcoma.org.uk/newincidence

Image of House of Lords, text reads 'Update: The Rare Cancers Bill has passed its Third Reading in the House of Lords'

The Rare Cancers Bill has passed its Third Reading in the House of Lords. A landmark step for people with sarcoma and other rare cancers, improving access to clinical trials, strengthening research and ensuring these cancers receive the urgency and focus they deserve.

sarcoma.org.uk/news

This week we caught up with last year’s Tricia Moate award winner, Johnson, at the British Sarcoma Group Conference to see how he was finding the day.

Apply today for the Tricia Moate award and the winner will be attending next year’s BSG conference.

sarcoma.org.uk/TMA

Two Manchester marathon runners post-run wearing medals.

More places are now available for the Manchester Marathon with #TeamSarcoma!

📅19 April 2026

Sign up today sarcoma.org.uk/manchester

We’re hiring a Finance Assistant at Sarcoma UK

You’ll focus on accurate bookkeeping, reconciliations and financial record-keeping to help ensure the smooth running of our financial operations.

📍 Hybrid working
💷 £11,600 p.a. (£29,000 FTE)
🕒15 hours per week

sarcoma.org.uk/vacancies

Group of Sarcoma UK staff at the British Sarcoma Group Conference

We’re at the British Sarcoma Group Conference 2026 in Oxford. The BSG unites the UK’s leading sarcoma specialists to share the latest in treatment and research. Today we marked 10 years of our Support Line and shared key findings from our State of the Nation Report. 💙

Maddy after her run wearing her medal, her family are standing behind her, holding umbrellas. The weather is raining and overcasr.

A huge thank you and congratulations to Maddy, who recently completed the London Winter Run in support of Sarcoma UK! Maddy took on this challenge for her dad, who is currently undergoing chemotherapy for sarcoma.

Why not take on your own challenge: sarcoma.org.uk/get-involved...

Last year at our Community Day in Bristol, Stephen Downes shared his powerful sarcoma story.

Watch here:
youtube.com/playlist

Sarcoma UK runner with Rob Burrow Leeds marathon logo

Join #TeamSarcoma on 10 May at the Rob Burrow Leeds Marathon or Half Marathon and be part of a truly special event, celebrating a city of strength and community.

Visit sarcoma.org.uk/leeds

There's still time to get your Glitter Ball tickets ✨
Join us in London on 7 March for an unforgettable night of sparkle and celebration, with legendary DJ Graeme Park on the decks, all in support of those affected by sarcoma. 💃🕺

🎟️ Get your tickets now at sarcoma.org.uk/glitterball

Five-year survival for sarcoma has improved from 55 percent to 61 percent.

That reflects better diagnosis, greater awareness and advances in treatment.

Help us carry on. Donate today and be part of what comes next. 💙

🔗sarcoma.org.uk/support-now

Two boxers sparring in a ring with dramatic lighting and crowd watching. Text reads "GET FIT 8 WEEKS FREE BOXING TRAINING" with UWCB Ultra White Collar Boxing logo and "Fundraise for Sarcoma UK" at bottom.

Ultra White Collar Boxing is a unique opportunity for people with no prior boxing background to experience the world of boxing, in a safe and enjoyable environment!

Take part in a phenomenal experience whilst supporting those affected by sarcoma.

ultrawhitecollarboxing.co.uk/signup/

One Cancer Voice branded graphic. 'Together, we're pleased to see the National Cancer Plan reflects the 6 tests we laid out in August. But plans alone don't save lives - we look forward to working with Govt on delivering their ambitious commitments for people affected by cancer.'

Cancer advocates outside Parliament holding colorful placards with statistics about cancer cases, survival rates, and treatment targets.

Last week, the Government published the National Cancer Plan for England.

We welcome this important step forward and stand ready to work alongside partners across the cancer community to ensure the plan truly delivers for everyone affected by cancer.

#OneCancerVoice

Lab researchers in white coats conducting experiments with scientific equipment. Text reads "Supporting the next generation of sarcoma researchers" with Sarcoma UK logo and turquoise arrow.

Dr Alex Lee from The Christie, Manchester. Funding amount £74,238 for research on understanding and improving care for people with uterine sarcoma. Dark background with circular photo.

Dr Ailsa Oswald from University of Edinburgh. Funding amount £74,664 for research on finding new ways to diagnose and treat uterine leiomyosarcoma. Dark background with circular photo.

Thank you message on dark background. Text reads "Together, your donations are improving outcomes for young people with sarcoma" with turquoise heart icon.

We’re funding two early career researchers to improve diagnosis and treatment of uterine sarcomas. Dr Alex Lee is exploring earlier diagnosis, while Dr Ailsa Oswald is studying tumour samples to help guide more effective treatments.

🔗 sarcoma.org.uk/news/sarcoma...

When conflicting information about her treatment left her feeling uncertain, Claire turned to the Sarcoma UK Support Line, gaining the clear, trusted guidance she needed.

Your donation today could make a life-changing difference for someone like Claire. 💙

Donate at sarcoma.org.uk/support-now

Brighton Marathon runners wearing Sarcoma UK running vests standing on Brighton Beach. Text reads Brighton Marathon 2026.

This is your last chance to sign up for the 2026 Brighton Marathon🏃‍♀️🌊

On 12 April 2026, join #TeamSarcoma for an unforgettable run along Brighton’s stunning seaside route.

Be part of something bigger and make waves for everyone affected by sarcoma. 💙

Apply today: sarcoma.org.uk/brighton

The Glitter Ball is BACK ✨
Join us in London on 7 March for an unforgettable night of sparkle and celebration, with legendary DJ Graeme Park on the decks, all in support of those affected by sarcoma. 💃🕺

🎟️ Get your tickets now at sarcoma.org.uk/glitterball

Anna and 8 year old daughter Penny at their Cuppa and Cake, standing behind a table with cakes on.

Huge thanks to Anna and Penny for their brilliant Cuppa & Cake bake sales for Sarcoma UK 💙
After Anna’s rare sarcoma diagnosis last year, she and her 8-year-old daughter Penny are raising awareness and funds through baking.
Host your own: sarcoma.org.uk/cuppa ☕🍰