Philippa Duell-Piening

Conceptual image with AI text in the middle

Our Disability Voice is out!
This month: AI and its impact on persons with disabilities.

➡️ Updated guide on disability inclusion under the AI Act
➡️ Infographics on AI’s impact
➡️ Our call to defend transparency safeguards

📖 Read it! mailchi.mp/edf-feph/dvj...

Mind launches inquiry into AI and mental health after Guardian investigation Exclusive: England and Wales charity to examine safeguards after Guardian exposed ‘very dangerous’ advice on Google AI Overviews

🧐 'A Google spokesperson said: “We invest significantly in the quality of AI Overviews, particularly for topics like health, and the *vast majority* provide accurate information...'

share.google/1dAqm7scYice...

Smiling person standing beside a research poster titled “Technology and Disability Rights” on a display board in a bright university building with large windows.

A month ago, I started at @uniofgalwaycdlp.bsky.social. My project explores how AI is impacting the autonomy of people with disability. One month in, I’m excited as the work starts taking shape and also a little overstimulated by the sheer volume of scholarship and activism across Europe

Screenshot of a library catalogue entry for the book Refugee displacement, disability and human rights: the production, processing and power of data by Philippa Duell-Piening. Published in London by Routledge, Taylor & Francis Group in 2025. The book is listed as available at the Main Library in Open Access with the call number 342.083 DUE. A small thumbnail of the book cover is visible on the left.

Just found out the library call number for my book is 342.083 DUE — and I’m honestly buzzing!
My 11-year-old library monitor self just high-fived me through time. 📚🙌
#LifeGoals #DeweyDecimalDreams

Screenshot of linked website – Student Data Cooperatives: Data Governance in Higher Education Thank you for your interest in our research. This research explores the idea of data cooperatives, which are groups where people collectively manage and control their data for mutual benefit. Specifically, it looks at students’ motivation and perspective on current data governance practices at the university and some alternatives, such as data cooperatives. Data cooperatives are voluntary, member-based organizations, where members pool their data together and manage it democratically for their own benefit.

.@dpetreski.bsky.social is a member of our 2025 Doctoral Academy. He is inviting students at #UniMelb to share their views on the ownership, sharing, and managing of data in higher education. q.surveys.unimelb.edu.au/jfe/form/SV_...

Don't forget to register for next week's online event to celebrate the launch of @duellpiening.bsky.social's new book.
#AcademicSky #RefugeeResearch #DisabilityResearch

Photo collage with the Refugee Displacement, Disability and Human Rights book cover on the left and then four headshots of the event speakers

EVENT – Join us on Wednesday 26 March for a panel discussion to celebrate the launch of Refugee Displacement, Disability and Human Rights: The Production, Processing and Power of Data by Dr Philippa Duell-Piening. events.humanitix.com/refugee-disp...

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Many thanks, Laura! I spent many hours engaging with your work during my research and writing process. I hope this contribution offers an additional perspective to the growing body of literature.

Thank goodness for the ABC! I am enjoying these 'ABC News verify' and 'Misinformation and disinformation' metadata tags on the website 🧐

✍️ If you’re interested in reviewing the book or would like to learn more, please get in touch. I’d be happy to connect you with the publisher.

#Disability #Refugee #HumanRights #Data #CRPD

🎉 I’m also excited about the official online launch happening in March! The event will feature an incredible panel of experts discussing the book’s key themes, including insights from disability human rights advocacy and humanitarian data production. I can’t wait to share more details soon!

💡 Although the official release date is Feb 25th, this early access lets researchers, practitioners, and advocates dive into the nuanced discussions on CRPD Art 31 in refugee contexts—examining how we can better balance the challenges of disability data production in humanitarian settings.

A screenshot of the University of Melbourne library catalogue entry for Philippa Duell-Piening’s book, Refugee Displacement, Disability, and Human Rights: The Production, Processing, and Power of Data, published by Routledge in 2025. The book is listed as part of the Routledge Research in Human Rights Law series and accessible as an online resource.

📚 I'm excited to share that my book, 'Refugee Displacement, Disability, and Human Rights: The Production, Processing, and Power of Data', is now accessible through libraries with institutional access to Taylor & Francis eBooks! 📚

Ageing in Australia as an African migrant University of Melbourne research reveals unique challenges facing older African migrants, particularly those living with disabilities

Dr William Abur, Dr Kofi Awuviry-Newton and Samuel Sakama have been researching how older African migrants living with disabilities navigate access to support services in Melbourne. pursuit.unimelb.edu.au/articles/age...

Let’s welcome the Disability History Association to Bluesky 🗃️

Join us!!

All We Have Is Each Other

Recommended listing – in the final episode of the Being Stateless Podcast @jordanas.bsky.social considers what it means to make home as a migrant – whether stateless or not - on stolen sovereign Aboriginal land. open.spotify.com/episode/0fkY...

Syria: Post-Assad Transition Should Center Human Rights The ousting of Bashar al-Assad’s government by armed opposition groups has created a momentous opportunity for Syria to break with decades of repression and turn the page on human rights.

3 new publications on #Syria from Human Rights Watch:

1⃣ On the post-Assad transition: www.hrw.org/news/2024/12...

2⃣ On the aid crisis in the northeast: www.hrw.org/news/2024/12...

3⃣ On how it's way too early for Europe to talk about sending refugees back: www.hrw.org/news/2024/12...

Merchants of Menace corporates that exist as the opposite of what they say they do

Banks that don't want to bank, employment services that don't serve the unemployed; health insurers that do not insure health. The uniting theme here is disdain for people. My newsletter today: rickmorton.substack.com/p/merchants-...

How a PhD in law is improving data policy for refugees with disability Dr Philippa Duell-Piening enrolled in a PhD to research how data management, people with disability and refugee rights intersect – and help inform broader policy discussions.

Dr Philippa Duell-Piening's PhD was supported by a Melbourne Social Equity Institute scholarship. A book with her research findings will be published by Routledge in early 2025. research.unimelb.edu.au/study/experi...

Legal literacy in a linguistically diverse society Moving to a new country involves a lot of learning. Not least important is developing an understanding of local laws. This is essential to avoid breaking the law but is also fundamental to full enj…

How do we learn about our legal rights & obligations? What if we're in a new place, in a different language?
These are some of the things I've been thinking about recently. Some initial thoughts in this post on @languageonthemove.bsky.social . Fascinating discussion in the comments!
#Langsky #Lawsky

A detailed research poster titled "Insights about 'Representative Data' from a Study on Disability Human Rights in Refugee Contexts" by Philippa Duell-Piening, Ph.D., presented at the AI Fairness conference in Bologna, December 2024. The poster features key findings, including challenges in adhering to human rights law while ensuring representative data, ethical data practices, and the tension between visibility and anonymity for individuals with disabilities in refugee contexts. It incorporates a framework analyzing power dynamics and visibility, and highlights the need for autonomy-respecting data practices. The poster includes citations, a bio of the author, and illustrative examples, such as a case study of an individual who is a blind refugee speaking Tigrinya.

For those interested in the details 🧐

AI Fairness highlight 3: A lunchtime conversation with Jose about the complex math and geometry he is using to categorize data. The goal is to provide individuals with greater transparency regarding automated decision-making. #NotMyField but incredibly interesting!

AI Fairness highlight 2: Ivana Bartolettie talking about the impact of the new EU AI Act. She believes the GDPR is under attack because it provides the primary protection and accountability for individuals from AI harms. The product risk focused EU AI Act does not offer (adequate) protection.

A close-up of a hand holding the book "From Pessimism to Promise: Lessons from the Global South on Designing Inclusive Tech" by Payal Arora

AI Fairness highlight: listening to Prof. Payal Arora discuss co-designing AI teaching materials with marginalized communities to challenge stereotypes. She emphasized the need to balance authenticity with dignity: "Some situations people don't want photographed." Looking forward reading her book!

A woman wearing glasses, a bright red sweater, and a white collared shirt is smiling in front of a research poster. The poster is titled, *"Insights about ‘representative data’ from a study on disability human rights in refugee contexts: Can data truly be representative without compromising autonomy?"* The poster includes sections on representative data, disability data in refugee contexts, and a framework for analysis, with text, diagrams, and visuals. The setting appears to be a conference or academic event, with the poster pinned to a light-colored wall.

Had a fantastic day at the AI Fairness event in Bologna! Inspiring speakers from academia and industry, fascinating conversations during the breaks, and a new book for the train ride home. I also received some great feedback on my poster and have a few exciting leads to follow-up!

A lecture hall with ornate, painted ceilings depicting classical architecture and nature scenes. The front of the room features a large projector screen displaying a presentation titled "AI Fairness: Addressing Bias, Stereotypes, and Discrimination in AI Systems." Attendees are seated in rows of chairs, and a few individuals are gathered near the stage area, which includes tables, a computer setup, and the Italian flag. Natural light filters in through tall windows on both sides of the room.

So this venue is pretty amazing

🚨Are you a person on the move interested in #BorderTech? Apply for our THIRD annual fellowship application with @migrationtechmonitor.com and @refugeelawlab.bsky.social!

Application materials (in whatever language!) are due December 31st 2024 www.migrationtechmonitor.com/aboutmtmfell...

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A poster titled "Insights about 'representative data' from a study on disability and human rights in refugee contexts: Can data truly be representative without compromising autonomy?" is displayed on a table. The poster includes sections on representative data, disability data in refugee contexts, a framework for analysis, and implications. It features a large diagram in the center, summarizing key concepts related to data representation, autonomy, and human rights. Several bullet points and paragraphs detail the study’s findings, analysis, and conclusions. At the bottom, there is an "About the Author" section with a small portrait photo.

Legal scholars love words, and this is my attempt to squeeze my research into 600 words. It took me three days! Also, feeling I could be a graphic designer if academia doesn’t work out. Looking forward to hearing people’s thoughts during the networking lunch. #InclusiveData #AIFairness #Networking