Hello BlueSky! 🦋 10,000+ rare diseases. 350M+ affected. 1 mission: unite patients & science for breakthroughs. Your stories spark hope. Your data stays yours. 🧬💜
CDISC creates clarity in clinical research by convening a global community to develop and advance data standards of the highest quality. CDISC is a 501(c)(3) global nonprofit charitable organization.
https://www.cdisc.org/
Research consortium developing new treatments for TB
European Regimen Accelerator for Tuberculosis
Grant Agreement no. 853989 — ERA4TB
era4tb.org
The European Federation of Neurological Associations [EFNA] is a non-governmental organisation (NGO) that brings together 21 pan-European neurology patient groups.
Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an association.
We're an EU public-private partnership funding health research & innovation under #HorizonEU. We also manage Innovative Medicines Initiative projects. ihi.europa.eu
Transforming Clinical Trials for Ultra-Rare Diseases.
🔗 https://realised-ihi.eu/
"Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and, in every way, to improve the lives of not only the patients, but the entire family.
Diamyd Medical is a swedish clinical-stage diabetes company active in the field of pharmaceutical development. 💙
Diamyd Medical’s shares are traded on Nasdaq First North Growth Market, ticker $DMYD B
www.diamyd.com
Dedicated to finding treatments and a cure for polycystic kidney disease (PKD). www.pkdcure.org
Creating #equity in the form of patient education, outcomes data and more for #preemies and #nicu pros. https://PreemieWorld.org
The Zaky® | Nurtured by Design
We innovate evidence-based solutions for children and families. Promoting safety, kangaroo care, and developmental care in NICUs, hospitals, and homes worldwide. Inspired by love. Powered by science.
The world's leading non-profit focused on necrotizing enterocolitis (NEC), a devastating intestinal disease that primarily affects medically fragile infants. Learn more at NECsociety.org
https://linktr.ee/NEC.Society
Hope for HIE is the global charity improving quality of life for families impacted by neonatal & pediatric acquired HIE through awareness, advocacy, education, research and support.
#NeoSky #NeuroSky #HopeforHIE
Official account. OHSU | Oregon Health & Science University is where healing, teaching and discovery come together.
Nationwide Children's Hospital, one of America's largest pediatric hospitals and an international leader in #research. A follow does not equal endorsement.
Founded in 1946, Binghamton University is the premier public university in the Northeast. Social media posting policy at http://j.mp/2YCj2S4.
Our mission is to cure Duchenne muscular dystrophy with our innovative venture philanthropy model that funds groundbreaking research, early diagnosis and treatment access.
🌍 Paris Brain Institute is an international scientific and medical research centre.
🇫🇷 L’Institut du Cerveau est un centre de recherche scientifique et médical.
👉 https://parisbraininstitute.org/
Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.
🌷The leading voice for #Parkinson's in Europe since 1992
🌷Supporting the 1.2m Europeans with #Parkinsons and their families
🌷Founder of #WorldParkinsonsDay
We’re Parkinson’s UK, the charity that’s here to support every Parkinson’s journey. Every step of the way.
https://prksn.uk/4g94RcM
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community.
Parkinson.org
Welcome to our official account 👋 Follow for the latest news, research and updates about life at Oxford.
Changing the world since 1451 🌍 | #TeamUofG #WorldChangingGlasgow https://www.gla.ac.uk/
Official page for Newcastle University UK, a founding member of the Russell Group of Research intensive universities, and a Global Top 140 university. #WeAreNCL
Breaking through in the therapeutic areas of oncology and neurology. View our community guidelines: https://us.eisai.com/social-media-guidelines
The Institute's Mission is to improve health, health equity, and the value of health care through practical, innovative, and evidence-based policy solutions.
Yes, it’s really us!
Our posts are FDA-approved!
Visit us at https://www.fda.gov
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app
