ME/CFS & postakute Infektionssyndrome (PAIS). Prävention & Primärversorgung.
- Univ.Prof. und Ärztin -
!Alles hier: my own opinion! = Private account
Spielt kein Taubenschach!
Physiotherapist | OBE 2024 | Fellow of Chartered Society of Physiotherapy | Elisse Zack Award for Excellence in #HIV #Rehabilitation | World Physiotherapy International Practice Award | Long COVID Physio past Chair
https://linktr.ee/darrenabrown
Scientist (PhD she/her), writer, cartoonist. 🦘 Blogging & Newsletter: Living With Evidence https://hildabastian.wordpress.com/ Mastodon enthusiast: @hildabast@mastodon.online
Systems scientist
Researching the etiology and pathogenesis of Long COVID and Myalgic Encephalomyelitis (ME)
Grad Student in Comp Sci @ UIUC @uofigrainger.bsky.social | Former Sr. Research Asst. in Radiation Physics @ Univ. of Texas MD Anderson Cancer Center @mdanderson.bsky.social, developed AI for RPA https://rpa.mdanderson.org | 🏳️🌈 he/him | Views are my own
Interested in the Arts, Long Covid since 2022, kids with ME/CFS, Crohn’s, Autism, PoTS
Pediatrician fighting for kids. Vaccines save lives. 💉💪 Masks work. 😷
she/her
#Medsky #Pedsky #covidconcious
Canadian watching the horror that Bronzolini and minions are inflicting on the world.
Never MapleMaga.
PwD just getting through the days…
she/her
#MECFS #ADHD
#DisabilityAdvocate
#COVIDIsAirborne
#CanPoli #OntPoli
#ClimateCrisis
#WomenAgainstPoilievre
Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #Antifaschist #fcsp 🤎🤍❤️ Check: emptystands.me
Homepage: https://www.bildung.uni-siegen.de/mitarbeiter/fritz
Mad mastcells and petulant PEM from Long Covid.
More precisely, LC of the subgroup MEcfs and MCAS.
23 | Cyber Security | Long Covid | ME/CFS
Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
Mom, humanist, anti-extractive. I do research - biomedical sciences through the lens of humanities & society with a focus on praxis. Settler on Turtle Island.
Better Society 🔄Better Sleep
Current focus MECFS & Long COVID research/care/community
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment.
Toronto, Canada
Ally of #pwLC
#pwME #LongCovid #POTS #MCAS #MEcfs
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her.
Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
Music 🎶 Film 🎞️
Hot Chips 🍟 Happiest by the sea 🌊
Forever exhausted
#pwME
Living small with ME on unceded Whadjuk Noongar country ("Perth, Australia")
#PwME, pianist, poet, wanna-be painter
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Music / #Swiftie / Video Games / Friends / Family
(Unceded) Canada
Participatory Design & Research/Strategy - Tech for Social & Global impact. Co-leading #longCovid @patientled research and Managing @obidigital
My pen is huge & I love sentences. And words. Like wombat & elixir. People & planet over profits. Build new systems. Equity. Inclusion. Justice. #BLM #LandBack #DefundHate #LongCovid #MECFS #Poetry #AcademicSky😷🍉🏳️⚧️
Banner: Large stone balls
PP: My 🤚🏼
Interested in
history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic,
ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
Librarian in the before times, artist in isolation, disabled not disposable.
There will be cats.
She/Her
Small but mighty, early educator teaching through the early pandemic years. 30 years teaching at-risk children & home visiting families. No longer essential now #LongCovid and #ME. Speak truth to power. #MaskUp 😷#EduSky #EarlyChildhoodEducation #VERMONT
She/her.
♿️
🏳️🌈🏳️⚧️ ally
In healthier times: Health & social care; homelessness & housing.
Music, music, music. 🎶
Mostly here to connect with
#LongCovid
#MECFS
#ChronicIllness
#Dysautonomia
#hEDS
#MCAS
Kent, UK
Author, Nature Rewilder🌱 Science/SF Geek🚀 Painter, Two-time Bram Stoker Award Finalist, Black Quill Award Winner, Ireland via California, LCFirstWave
population health, scientist, feminist, living with rare disease, disability and chronic illnesses, NDIS, lover of books & science, all posts are personal
Science Journalist
#LongCovid Context
ABSW 2024 Awards Finalist
theMHS 2024 Awards "Highly Commended"
Portfolio https://muckrack.com/martinangler
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
SevereME/vax injured. Can't read, write, watch, walk or talk much. Just me, my bed & my swollen brain. Trying to stay sane. Roy Kent is my spirit animal.
Medicine Song Woman. 🎤😷Indigenous Keynote Speaker/Singer, Hand Drummer. Long COVID, CFS/ME & CPTSD. GenX. Trauma-informed virtual circles and mentoring for COVID-conscious women. NO DMs without permission. https://medicinesongwoman.com 😷she/her
ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden
#pwME #MECFS #NEISvoid #ChronicIllness
Came here from: https://twitter.com/ezchili
Mostly bedridden with severe myalgic encephalomyelitis/ME
Interests: health, reading, nature, film, photography, art, travel, social issues
Former blog: www.dreamsatstake.com
#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Mom of 4, wifey, family doc practicing comprehensive longitudinal care with a special interest in home visits. I teach, do some research, help on committees, curl poorly, am learning to cook better, and love food!
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Dinosaurs eat man. Woman inherits the earth🦖
OG Covid Long-hauler since 3/2020
Host of the top weekly Long Covid space!
Sunday Brunch🥂every Sunday @ 11am pt
Twitter @caffeinatedtdlr
#CovidIsntMild #FirstWave #AirAIDS #LongCovid #MaskUp #pwLC #Covid
“Convinced that such USE would be repugnant to the conscience of mankind and that no effort should be spared to minimize this risk..” BWC.
https://covidtoolbox.com/
Every violation of truth is not only a sort of suicide in the liar, but is a stab at the health of human society. -Ralph Waldo Emerson
Cardiologist, Medical Writer/ Editor, Chief Medical Officer of Blooming Magnolia, #LongCovid advocate, Jersey Girl turned Californian, Ocean/Sun/Palm Tree Lover, Triathlete/Runner/College Rower
Former Professional Communicator. Alberta, Canada. Infected March 13/2020. 1st Wavers identified & named OUR disease. It is LONG COVID. Switch flipped: from victim to WARRIOR. #LongCovid https://covidtoolbox.com and https://longcovidland.com
RN
She/Her
Disabled LC, VI and other stuff
Nature, animals, art, science, humor, compassion for others and HONESTY
Stuck on health imposed house arrest.
cb_grl on Twitter. Asian! Books! Star Trek! Christ follower. When I am able, I enjoy playing trivia w/ #pwlc. snoopy memes cheer me up. hetereodox in my opinions #covidsky
Will block bots, grifty & sus accounts with no info.
🥔 appalachian autistic aquarelle artist advocate activist 🌈 she/they
↓ 𝗖𝗢𝗩𝗜𝗗 𝗥𝗘𝗦𝗢𝗨𝗥𝗖𝗘𝗦 ↓
beacons.page/pot8um
A bit bothered by ongoing SARS2 pandemic, climate catastrophe, the rise of the far right etc etc. Generally not amused with how things are going. covidtoolbox.com
Research Director of the #Exercise #Technology & #Cognition Lab | #Movement #Neuroscience | Husband | Dad | #MartialArtist | #FlowArtist | #Tennis Teaching Pro | Advocate for Persons with Long Covid
There once was a place that beat covid easily. Now; dysfunction as leaders hush sleazily 🐘🙈🙉🙊
*I do not consent to #SocialMurder or passive #Eugenics 😷
Australian YouTuber covering online culture, media & influencer controversies
Featured in 60 Minutes, The Australian, ABC News & The Advertiser
Independent journalism • Patreon supported ⬇️
#LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
Trauma-informed PT specializing in chronic pain | Suspected EDS / confirmed CCI | MCAS | Mold | Lyme | 😷🦠
Covid modeler/research, @TheWHN volunteer, free pathogen newsletter at josepheastman.substack.com, former NASA scientist, renewable energy scientist, atmospheric scientist, ecologist, and modeler of about any system https://substack.com/@josepheastman
Long COVID since August 2021🤕 • stuck here 🏠🛏️🛋️ • SARS-CoV-2 is airborne🦠
Curious observer. First wave LC
Not participating in popular delusions.
Proud 🇨🇦 mom of 2 amazing kids, wife and engineer!⛷️🥾 🌳 🌸 📚 🎶 🌊 🧳 👯♂️ On a mission to share beauty, hope, strength & knowledge! Long COVID March 2020❤️ ✌️
X: @cockapoowinnie
Retired intellectual property attorney
Language learner
Amateur photographer
Care-monger
Instant blocks for fascists, minimizers and unsolicited DMs
Reposts are not endorsements
e.g. artist, dog-lover, avid reader, jet flyer & fruit picker.
Too dead to die. #ME #LongCovid.
Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: covidlonghaulers@gmail.com
#MedSky
facebook.com/groups/COVIDLongHaulers
YouTube.com/@covidlonghaulers
Patreon.com/BrookeLine
1st 🌊 🦠 survivor, LC / vax disabled
No War but Class War
No Compromise in the Defense of Mother Earth.
🚩🏴🍞 #DirectAction
Linktr.ee/covidisntover
Community calendar of virtual events
Community bulletin board
Resource doc
Weekly accessible actions for Palestine event @centeringpalestine on IG
Retired Lawyer, cook, Europhile, books, music, good conversations, gardens, walking. Bird site refugee 🇬🇧 🇮🇪
Viruses, Evolution, Education, Trade Unions, things like that. Prof at Uni of Oxford, NEC member for UCU. Posts mine, reposts not.
Pro Dean Research and Innovation in Engineering and Physical Sciences at Leeds University. Indoor air, ventilation, infection risks, fluid dynamics, academia, EDI in science and a few cats. Views my own. #academicsky
Member of Parliament for Oxford West and Abingdon | Chair of the Health & Social Care Select Committee | Here because Musk ruined the ‘other (social) place’ | she/her | Promoted by the Lib Dems, Unit C5 Grange Court, Barton Lane, OX14 3NB
Biophysical Chemist. Aerosol scientist. Jew. Likes lipids, nano materials, x-ray / neutron scattering, pretentious coffee. (he/him/his). Twitter @adsquires
MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary
Winner of the Book Bloggers' Novel of the Year Award 2022
Owned by three-legged rescue dog
ME/CFS
https://linktr.ee/SallyDoherty
Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003.
youtube.com/vladvexler (main channel)
youtube.com/vladvexlerchat (chat channel)
youtube.com/@vladvexlerphilosophy
Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com
Anti-genocide.
Smart Air is a social enterprise and B-Corp committed to changing the way we breathe clean air! We create incredibly effective air purifiers and share life-hacks and tips on protecting your health from poisonous air
Providing free air purifiers to Chicago artists, organizers, and touring musicians.
linktr.ee/cleanairclub
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Long Covid & PE recovery.
GeographyTeacher.
Sustainability & Climate Change.
BSc Env Science & Physics (Stirling).
Soil Erosion PhD & Geog PGCE (Exeter).
Tuba player.
Devon, UK
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability
Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
Post-Covid ME/CFS since March 2021. Before then, a life I loved.
Stanford History | 2021 Schwarzman Scholar
