https://simondelfavero.com
#1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
Writer, plant-lover, #healthpolicy nerd. Ex-OpenDemocracy UK editor. NUJ/Unite/Green. Grew up on free school meals. Stroud-based. caroline.molloy@cantab.net
Horizontal advocate for #pwME. 🇳🇱 in 🏴. Medically Retired Hardware Engineer. FOSS Fan.
Ally. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
What if your body ran like a failing economy? Shrinking reserves. Impossible trade-offs. I write about #LongCOVID and #MECFS with brutal honesty and zero fluff. Also: Star Wars, comics, cats, and Penguins goals. 🚨 #LetsGoPens
https://darthfoo.substack.com
Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Former MP for Brighton Pavilion, former Leader & Co-Leader of @greenparty.org.uk.Co-President of the European Movement. Mum of 2, plus puppy Nell. Author, Another England: How to Reclaim our National Story. Still writing & campaigning on climate & nature 🌎
Progressive, pro-European volunteer-run, citizen journalism for Cornwall, Devon, Dorset and Somerset. Human rights, democracy, climate, NHS, corruption... Telling it like it is. Can't let the far-right dictate the narrative! #Resist!
Consultant Clinical Microbiologist
Current interests: Bacteriophage therapy, AMR, hospital water and ventilation, Airborne pathogens, IAQ, Fresh Air in the NHS= ventilation + Culture change
Lots of gardens and hills too
Novel coronavirus looking for friends. Always evolving. Pronouns it/its.
Facilitator | Researcher | Advocate
Author of The Long Covid Symptom Diary, now available in EN, FR, DE, NL & ES! - www.ddxpublishing.com
Social psychologist @Sussex.ac.uk. Collective behaviour, crowds, emergencies, Covid http://tinyurl.com/anw6sxrs Member behavioural sub-group @independentsage.bsky.social Views my own.
Writer/journalist specializing in medicine/health. Living with type 1 diabetes since 1973.
Disrupting power since 2015
Editor and CEO, Zeteo
Author, ‘Win Every Argument’
British-American
Green Party Campaigner | Living with Long Covid | Bradford | Shipley Town Councillor 2020-24 |
https://linktr.ee/darrenparkinson
Promoted by D Parkinson (Bradford Green Party) at 88 Hirst Wood Road, Shipley, BD18 4BU.
Not-for-Profit Organisation supporting Australians living with ME/CFS (mylagic encephalomyelitis / chronic fatigue syndrome) and long COVID.
Education | Research | Advocacy | Support Services
Website: www.emerge.org.au
Donate: www.emerge.org.au/donate/
Research, news, and commentary from Nature, the international science journal. For daily science news, get Nature Briefing: https://go.nature.com/get-Nature-Briefing
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
#LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Patient/Caregiver-led nonprofit 501c3 focused on #MECFS and #LongCovid • https://Renegade-Research.org 💙 Runs project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
• Advocate/Organizer: Immune-Associated and Infection-Associated Chronic Illnesses, ME/CFS, Long COVID, Lyme, disability and women
• Writer: Washington Post, Marie Claire magazine, NPR, Ms. magazine, Newsweek
• Playwright: Dozens of productions
Neurologist and more. https://www.atria.org/doctors/dr-ilene-ruhoy/
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
CEO @weandmecfs Supporting our sons and everyone else fighting with #MECFS and #PAIS
New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume.
Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍
Facilitator PACE program 👣🫂🌈
LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈
Homebase: Berlin
Creator of fithacker.app and choosier.com
Researching “the greatest medical scandal of the 21st century”. Infection-Associated Chronic Illness, activism, stigma, medical humanities. Postdoctoral fellow in Sociology.
PwME, Norway
📎 «Solidaritet er ikke et grunnstoff som finnes i naturen. Det rettferdige samfunn må vi ville og velge.» -Per Fugelli
«You already possess a fascism-killing machine. It’s called a good heart.» -George Monbiot
Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
MP for Birmingham Yardley
Green MP for Bristol Central.
Former Co-leader of the Green Party of England and Wales.
Engineer. Bi 🏳🌈. She/Her.
Need to get in touch?
📧 carla.denyer.mp@parliament.uk
Fast, informed, comprehensive coverage of UK politics.
With debate & insight from Parliament via The House magazine.
Subscribe to our podcast: http://bit.ly/3M8d963
Read our stories: https://www.politicshome.com/
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧
Mine of occasionally useful information.
NHS and healthcare 💙
#Equality #Justbe #Inclusion
#LGBTQ+ 🌈 ally
#pwME
#MECFS
#Activetravel 🚲
#Sustainability
#Gardening
#VisibleApp
Co host @thenewsagents .
Formerly @bbcNewsnight - interviews with Prince Andrew Donald Trump Bill Clinton Mark Zuckerberg etc etc .
Investigative journalist. Ex-Guardian/Observer. Now co-founder brand new all-women journalist collective, www.thenerve.news. Tech justice stuff: www.the-citizens.com. Personal newsletter: www.broligarchy.substack.com
I’m not always having a go at wrong’uns…sometimes I’m sleeping | Political Commentator & Co-Host of The Trawl Podcast https://linktr.ee/thetrawlpodcast | @TimesRadio | @jeremyvineon5
Political writer, broadcaster, podcaster and host of Rock N Roll Politics live shows. Latest book-Turning Points in Modern Britain
Journalist, podcaster (Origin Story) and author (33 Revolutions Per Minute, The Ministry of Truth, Everything Must Go, Origin Story books). Anti-doomer despite everything. www.dorianlynskey.com
Economics editor at the Guardian. Former political editor, former Observer economics editor. Londoner, Mum.
heather.stewart@theguardian.com
Hello lovelies. This is my official account.. 💙💙
Glad to be over here from the "other place"😂
It's like breathing clean air again 👍🏼
Political Editor, The Guardian
https://www.theguardian.com/profile/pippacrerar
The UK's only reader-funded, independent newspaper that truly sits outside of the established system.
Subscribe for exclusive content in the Byline Times monthly print edition: subscribe.bylinetimes.com
Visit our free daily news site: bylinetimes.com
Political journalist & broadcaster |
Westminster Editor at the Lead UK |
Presenter on Fubar Radio |
Chatting on Oh God What Now |
Find my work and commission me here: https://www.zoegrunewald.com/
Guardian writer, but one time I said something inflammatory to the US right & they called me a Diseased Pitmommy. So that's what I go by now
Whitehall Editor for the Observer & chief investigator for BBC R4's The Naked Week. Politics, investigations and taramasalata
Associate Political Editor @NewStatesman. Devout classicist, "indulgent editrix", at one point the only Ancient Greek teacher in South Korea
Guardian columnist & writer, author of Half a Wife, sometimes on telly/Guardian Politics Weekly podcast. No, I didn't write the headline. Event host & speaker https://www.specialistspeakers.com/?p=2705
Words and smiles.Partridge, Thick of It, Veep,Death of Stalin, Dr Strangelove on stage, Podcast #StrongMessageHere. https://www.bbc.co.uk/sounds/brand/m0024cp6?partner=uk.co.bbc&origin=share-mobile Patron of Child Poverty Action Group, @cpaguk.bsky.social.
Socialist, antifascist, writer in various places, geriatric millennial, GQ's 9th Worst Dressed Man in 2016. He/him. YouTube channel http://bit.ly/33iARb3 🏳️🌈
Writer, strategist, co-presenter the U.K. No1 podcast The Rest Is Politics … love Britain hate Brexit, loved Twitter loathe Musk n Trump
Journalist, Reporter, Writer, Presenter @ Britain's biggest news podcast The News Agents (Mon-Fri) and Sunday with Lewis Goodall on LBC 10-12.
Website: lewisgoodall.com
Email: lewis.goodall@global.com
Substack: https://goodallandgoodluck.substack.com
Political columnist, The Guardian
Author, Politics, A Survivor's Guide
Website: https://rafaelbehr.com/
Patient-Led Research for #LongCovid! http://patientledresearch.com
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
UK 42 year old mum of preteen, had ME since early 20’s and I am a Specialist ME Physiotherapist www.mephysio.org.uk
Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
Energetically compromised #pwME and patient advocate (when able) · Research scientist by trade · Interested in how we live · Open-minded but generally sceptical
https://domsalisbury.github.io
ME patient advocate, architect by training
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
Science Journalist
#LongCovid Context
ABSW 2024 Awards Finalist
theMHS 2024 Awards "Highly Commended"
Portfolio https://muckrack.com/martinangler
Participatory Design & Research/Strategy - Tech for Social & Global impact. Co-leading #longCovid @patientled research and Managing @obidigital
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
Mom, humanist, anti-extractive. I do research - biomedical sciences through the lens of humanities & society with a focus on praxis. Settler on Turtle Island.
Better Society 🔄Better Sleep
Current focus MECFS & Long COVID research/care/community
🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org
🔵 Pw/ #LongCOVID, #IACCS, #Disability
🔵 Fmr. Firefighter/Paramedic
🔵 Fmr. Educator, Coach, & Dir. of Athletics
🔵 B.S. (ex science & health promotion)
🔵 #StillCOVIDING #COVIDConscious #Mask
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Ehemann, Jurist. #MECFS.
Team #SIGNforMECFS. Team #GOfundMECFS.
One of the #MillionsMissing.
Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
A neurologist, M.D., mother of a 17-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Freelance Medical and Science Writer | PhD in Cancer Immunology |
ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Public/community engagement and involvement. Based in Oxford, interested in scicomm, global health, MEL. Love fibre crafts, cats, plants and Bangkok. Views are my own. She/her. https://www.tropmedres.ac/research-areas/bioethics-engagement
Vegetarian, book lover📚
ME/CFS since 1990 ♿️
She/Her
What's ME/CFS? = https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527
Mastodon = https://disabled.social/@ahimsa_pdx
Profile: Tabby cat w/white chest & paws
Banner: Green trees
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
